Phenylketonuria (PKU) is a rare genetic disorder detected through a blood test at birth. Children who have PKU lead normal lifestyles by maintaining a specialized diet. Since 1997, our camp, in collaboration with Children's Hospital in Boston, offers a coed week of camp in August where children with PKU join campers with and without PKU for a totally integrated week of overnight summer camp.
This opportunity allows children with PKU the unusual opportunity to meet other children facing the same issues, while following the specific PKU diet in a normal camp environment. Campers stay in cabins and participate in a specialty activity of their choice, such as sailing, tennis, performing arts or horseback riding.
Meals for children with PKU are prepared by the group of volunteer staffers and professionals organized by Children's Hospital, Boston. Often coordinated to coincide with our traditional menu, food choices are based on medically-prescribed diets and served from a buffet style table designated for campers with PKU. Metabolic staff and nutritionists are available at our Camp to provide low-protein meals and help prepare formula, maintain diets and offer support.
The information provided in this website was supported by Grant/Cooperative Agreement Number U59DD000906 from the Centers for Disease Control and Prevention (CDC). The contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC.
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