Resources

Muscular Dystrophy Association:  http://mda.org/

Physical Activity Guidelines for People with Disabilities:  http://www.health.gov/paguidelines/guidelines/Chapter7.aspx

References

1. Chen, R. K., & Crewe, N. M. (2009). Life Satisfaction among People with Progressive Disabilities. The Journal of Rehabilitation, 75(2), 50+.
2. "Muscular Dystrophy." Gale Encyclopedia of Nursing and Allied Health. Gale. 2006.
3. Diagnosing and managing muscular dystrophy. Richard W. Orrell. The Practitioner. 256.1754 (Sept. 2012) p21.
4. "Genetic Muscular Dystrophy." UXL Encyclopedia of Diseases and Disorders. U*X*L. 2009.
5. Kierkegaard, M., Harms-Ringdahl, K., Holmqvist, L., & Tollbäck, A. (2011). Functioning and disability in adults with myotonic dystrophy type 1. Disability & Rehabilitation, 33(19/20), 1826-1836. doi:10.3109/09638288.2010.549287
6. Helderman-van den Enden, A. M., van den Bergen, J. C., Breuning, M. H., Verschuuren, J. M., Tibben, A. A., Bakker, E. E., & Ginjaar, H. B. (2011). Duchenne/Becker muscular dystrophy in the family: have potential carriers been tested at a molecular level?. Clinical Genetics, 79(3), 236-242. doi:10.1111/j.1399-0004.2010.01579.x
7. Judge, Daniel P; David Kass,; W Thompson,; Kathryn Wagner,. "Pathophysiology and Therapy of Cardiac Dysfunction in Duchenne Muscular Dystrophy." American Journal of Cardiovascular Drugs. Springer Science & Business Media. 2011.
8. “Muscular Dystrophy." Gale Encyc  Helderman-van den Enden, A. M., van den Bergen, J. C., Breuning, M. H., Verschuuren, J. M., Tibben, A. A., Bakker, E. E., & Ginjaar, H. B. (2011). Duchenne/Becker muscular dystrophy in the family: have potential carriers been tested at a molecular level?. Clinical Genetics, 79(3), 236-242. doi:10.1111/j.1399-0004.2010.01579.x
9. Judge, Daniel P; David Kass lopedia of Nursing and Allied Health. Gale. 2006.
10. "Muscular Dystrophy." Gale Encyclopedia of Nursing and Allied Health. Gale. 2006.
11. Ozcetin, Mustafa; Omer Ates,; Semiha Kurt,; M. Firat,; Fatma Silan,. "A case of congenital muscular dystrophy similar to Fukuyama-type with a missense mutation in the fukutin gene." Journal of Pediatric Neurology. Journal of Pediatric Neurology. 2012.
12. Ezzell, Carol. "Myotonic dystrophy: a short gene at best." Science News. Science Service, Inc. 1992.
13. Wagner, Kathryn. "A new era for treatment of muscular dystrophy.(SPECIAL NEEDS: REALIZING POTENTIAL)." Pediatric News. International Medical News Group. 2009.
14. Duchenne muscular dystrophy. Andrew Kornberg and Eppie Yiu. Neurology India. 56.3 (July-September 2008) p236.
15. Severe respiratory and skeletal muscles involvement in a carrier of dysferlinopathy with chronic obstructive pulmonary disease. Giovanni Balzano, Salvatore Fuschillo, and Yvan Torrente. Respiratory Care. 55.8 (Aug. 2010) p1091.
16. Therapy Insight: cardiovascular complications associated with muscular dystrophies. Heather MacLeod and Elizabeth M McNally. Nature Clinical Practice Cardiovascular Medicine. 2.6 (June 2005) p301.
17. Angelini, C., & Tasca, E. (2012). Fatigue in muscular dystrophies. Neuromuscular Disorders, 22S214-S220. doi:10.1016/j.nmd.2012.10.010
18. Speakers discuss treatment of muscle metabolic defect, muscular dystrophies, exercise therapy in muscle disease and gene therapy at ENS conference. Pulse International. 12.16 (Aug. 31, 2011).
19. van der Kooi AJ, Lindeman E, Riphagen I. Strength training and aerobic exercise training for muscle disease. The Cochrane Library. 2010;2.
20. Lindeman E, Leffers P, Spaans F et al. Strength training in patients with myotonic dystrophy and hereditary motor and sensory neuropathy: a randomized clinical trial. Arch Phys Med and Rehab 1995; 76 (7): 612-20
21. Moderate exercise is safe and improves fitness in patients with Becker muscular dystrophy. Nature Clinical Practice Neurology. 4.12 (Dec. 2008) p638.
22. Wenneberg, S., Gunnarsson, L., & Ahlström, G. (2004). Using a novel exercise programme for patients with muscular dystrophy. Part I: a qualitative study. Disability & Rehabilitation, 26(10), 586-594.
23. "Qigong." The Gale Encyclopedia of Senior Health: A Guide for Seniors and Their Caregivers. Gale. 2009.
24. Craske, N. (2009). Qigong Ameliorates Symptoms of Chronic Fatigue: A Pilot Uncontrolled Study. Evidence-Based Complementary & Alternative Medicine (Ecam), 6(2), 265-270.
25. Wenneberg, S., Gunnarsson, L., & Ahlström, G. (2004). Using a novel exercise programme for patients with muscular dystrophy. Part II: a quantitative study. Disability & Rehabilitation, 26(10), 595-602.
26. ACSM’s Guidelines for Exercise Testing and Prescription and other ACSM publications