Research Participants Needed, Rehabilitation Research and Training Center (RRTC) on Aging with Developmental Disabilities (RRTCADD)
The RRTCADD is recruiting individuals with intellectual disabilities to participate in two of its studies on health issues.
- The Longitudinal Health and Intellectual Disability Study (LHIDS) seeks to increase our understanding of the unique health needs of adults with intellectual disabilities. LHIDS is seeking individuals 18 and older in the U.S. with intellectual disabilities and thier caregivers in order to learn how certain health behaviors such as diet and physical activity are related to their health. The survey takes about 20-30 minutes to complete and is conducted once a year for five years. It includes questions about current health problems, participation in physical activity, alcohol consumption, diet, and oral hygiene. To register for or learn more about the study, please contact Benjamin Graham, the project coordinator, at (312) 355-1396 or bcgraham@uic.edu. You can also register at the RRTC-ADD website, www.rrtcadd.org.
- Neurodevelopmental Conditions and Lifespan Health Outcomes is seeking collaboration sites to participate in its study to identify trends in age-related health decline, including biomarkers associated with the onset of secondary conditions in adults with specific neurodevelopmental disabilities. Sites will be asked to collect data on a sample of the individuals they serve using a 16-page questionnaire. If you or your program/center would be interested in collaborating by collecting data on even just a few subjects, please contact Matthew Janicki at mjanicki@uic.edu.
Research on Leisure Time Physical Activity, Kent State University
A study examining things that promote or impede the leisure-time physical activity of young adults between the ages of 17 and 27 with visual or mobility impairments is recruiting participants. Researchers plan to share what they learn with service providers of recreation and fitness services as well as student accessibility services on college campuses to promote greater participation. Participation includes an electronic survey that will take approximately 15 minutes.
If you are interested or would like further details, please contact Dr. Mary Ann Devine, Associate Professor, Kent State University, at mdevine@kent.edu or (330) 672-0214.
Cerebral Palsy Research Registry, Northwestern School of Physical Therapy and Human Movement Sciences, Rehabilitation Institute of Chicago, and University of Chicago
The mission of the Registry is to promote and facilitate research in the area of cerebral palsy by connecting persons with cerebral palsy with leading researchers. The current enrollment questionnaire is geared for persons 21 years old and younger. An adult questionnaire will be on the website soon.
Check out the website at www.cpregistry.org or call Donna Hurley, PT, DPT at
(312) 503-3342 for more information.
Video Game Play - Have Your Say!, Blue Marble Game Co.
Blue Marble Game Co., a small independent video game company owned by physical therapists, neuroscientists, and game designers, is interested in hearing about your experience with video games both at home and during rehab in order to better design the games. They are conducting a worldwide survey to gather information about specific experiences with video games in order to better understand likes, dislikes, and specific needs and abilities. This survey is anonymous and results will be shared with the scientific and game industry community in order to inform the industry and provide suggestions for game design and modification to better meet the needs of people with disabilities.
Please visit www.bluemarblegameco.com for more information and a link to the online survey. For more information or for questions, please contact Sheryl Flynn at sherylflynn@gmail.com.
Survey on Wheelchair User Experiences, University of Connecticut
Research analysts at University of Connecticut invite individuals who use wheelchairs to participate in this survey and share thoughts and opinions pertaining to wheelchair use. Responses will remain confidential and will provide valuable insight into current needs in an effort to promote the development of improved wheelchair services and technologies. The survey should take approximately 10 minutes to complete. Your responses will only be used in this student research.
To take this survey, go to http://www.zoomerang.com/Survey/?p=WEB229DYFNSVLC. For questions please contact Carlton Forse at carlton.forse@business.uconn.edu or (860) 728-2143.
Research Study (Master's Thesis) on Issues Surrounding Children with Autism Spectrum Disorder (ASD) in Leading Physically Active Lifestyles, University of Illinois at Chicago, Department of Disability and Human Development
Who: Parents of children with Autism Spectrum Disorder (ASD) and their child with ASD who is 12-18 years old as well as their child without ASD who is 12-18 years old.
What: Participation in an online confidential survey about the health and physical activity lifestyles of teens with ASD compared to their siblings without ASD.
How: Simple (confidential) participation in a 15-minute online survey by both you and your children.
Why: Your information will help us better understand what factors are related to children with Autism Spectrum Disorder being physically active.
To complete the survey, go to Health and Lifestyles Comparison of Youth with Autism Spectrum Disorder (ASD) Parent Survey at http://www.ncpad.org/survey/survey.php?sid=72.
For more information or if you have difficulty accessing the survey please contact Dr. James Rimmer (faculty sponsor) at (312) 413-9651 or jrimmer@uic.edu.
Online Stress Management Program for Parents of Children with Intellectual Disabilities and Autism, Jones Iris Media, Eugene, OR
This National Institutes of Health project is looking to develop an online multimedia stress reduction program for parents with children who have developmental disabilities. When the project is completed, parents will have access to a skill-building program that will help them develop positive coping capacities, provide them with tools for monitoring their progress, and help them assess whether additional, more intensive supports will be needed. Parents will complete an online questionnaire, gain access to web-based program materials for one week, and then complete a final questionnaire.
For more information, please go to www.lookiris.com or contact Martin R. Sheehan, Ph.D., Researcher, IRIS Media at marty@lookiris.com.
Are You A Cancer Survivor Who Had Limitations In Activities Of Daily Living Prior To Your Cancer?
If you have completed active treatment for your cancer, you are invited to participate in a study to help understand how cancer survivors who had a functional limitation or disability before being diagnosed with cancer take care of their health. Your information will help health care providers work more effectively with survivors such as yourself. You can earn $25 by completing a questionnaire packet.
If you are over the age of 21 and have completed active treatment, please call (800) 687-8010 or email maxhealth@mail.nur.utexas.edu for more information.
Body Composition Assessment in Spinal Cord Injury, Hunter Holmes McGuire VA Medical Center, Richmond, VA
Are you:
- 1 year after spinal cord injury?
- Between the ages of 18 and 65?
- Available for 2 consecutive days?
- Located in the Richmond area?
If you answered YES, you may be eligible to participate in a spinal cord injury research study to evaluate and compare different ways of measuring body composition (amounts of fat, muscle, bone, and water in your body) and to determine relationships with other health conditions. This study is being conducted by Dr. David Gater and treatment will be provided at no cost.
If interested, please contact Joshua Miller at (804) 675-6200 or Joshua.Miller@va.gov.
Exercise to Reduce Obesity in Spinal Cord Injury, Hunter Holmes McGuire VA Medical Center, Richmond, VA
Do you meet these criteria:
- 1 year after injury?
- Willing to exercise 5 days per week?
- Available for 5 consecutive months?
- Located in the Richmond area?
This research study is being conducted by Dr. David Gater and is to evaluate and compare the benefits of arm exercise vs. leg exercise using electrical stimulation.
If interested, please contact Joshua Miller at (804) 675-6200 or Joshua.Miller@va.gov.
Would You Like to Know How Accessible Your Fitness/Recreation Facility Is?
The University of Illinois at Chicago is looking for health and fitness professionals who are employed at a fitness/recreation facility to complete an accessibility survey on their facility as a part of a national study. Facility staff that participates in the study will have the option to receive feedback and advice on ways to further improve the accessibility of their facility.
If you would like more information on the study, please contact Carolyn Lullo in the Department of Disability and Human Development at clullo2@uic.edu or (312) 355-1400, or go to http://www.ncpad.org/survey/survey.php?sid=74.
Electrical Stimulation Training of Paralyzed Muscle, University of Georgia and Shepherd Center, Atlanta, GA
If you are between the ages of 18 and 59, live in the Northeast Georgia area, and have complete paralysis of lower legs, you can be a research subject to test whether home-based electrical stimulation training can improve glucose tolerance and reduce diabetes.
For more information, contact Kevin McCully, Ph.D., Kinesiology Department, University of Georgia, at (706) 542-1129 or mccully@uga.edu.
Request for Research Participants, Department of Disability and Human Development, University of Illinois at Chicago
The University of Illinois at Chicago is looking for children with disabilities aged 12 to 18 and their parents/caregivers to complete an Internet-based survey on the lifestyle and environment of adolescents with disabilities. This survey can be found by visiting http://www.healthforyouth.org and entering the access code: NCPAD.
For more information, or if you have difficulty accessing the survey, please contact Brienne Davis in the Department of Disability and Human Development at bdavis7@uic.edu or (312) 355-4054.
Illinois Women's Health Registry at Northwestern University
The Institute for Women's Health Research at Northwestern University has developed a private, secure database of demographic and health-related information for Illinois women age 18 and over. Through a confidential questionnaire, the Registry aims to understand the relationship between health and other factors such as lifestyle, socioeconomics, and stress. As a participant, you can help advance knowledge of gender differences in health and wellness. You can also be considered for research studies and get information from leading health professionals through the Registry's newsletters and online blog.
To enroll please visit https://whr.northwestern.edu or call (800) 984-IWHR.
