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  • The Spina Bifida Association of America (SBAA) serves adults and children who live with the challenges of spina bifida. Since 1973, SBAA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with spina bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research and service.

    Since 1973, SBAA has served as the nation's only voluntary health agency dedicated to enhancing the lives of those with spina bifida and those whose lives they touch. Through its network of 57 chapters, SBA has a presence in more than 125 communities nationwide and serves thousands of people each year.

    SBAA programs aim to increase awareness and knowledge of Spina Bifida, positively impact independence of people with Spina Bifida, and empower the Spina Bifida Community of children and adults living with Spina Bifida, families, caregivers, and professionals. We do this by creating and developing innovative programs based on research with our audiences. We aim to reach the Spina Bifida Community nationwide and to serve the needs of the community.


  • Toll Free 800 Information and Referral Service
  • Bi-monthly Newsletter,Insights
  • Legislative Updates
  • Publications
  • Agent Orange Class Assistance Program
  • Professional Advisory Council
  • Nursing Council
  • Conferences and Educational Symposiums
  • Adult Network
  • Scholarship Fund
  • Public Awareness Campaigns
  • Real Stories
  • Chapter and Member Services
  • National Public Service Announcements
  • Individual and Systems Advocacy
  • Research Fund